A survey to better understand the experiences of caregivers and siblings of people who have experienced a manic episode or psychosis.
About this study
Both mania and psychosis can involve changes to a person’s mood, thinking, and behaviour and can impact a person’s social life and participation in work or education. These mental health conditions not only affect the person who has the disorder but also the lives of family members and friends who help support them.
If you provide care to or are the sibling of someone who has experienced a manic episode of psychosis, complete this survey to contribute to a better understanding of caregiver and sibling experiences. This information will be particularly helpful for working out ways to better support caregivers and siblings.
Contact the study coordinator/investigator at Orygen research for more information.
Who can take part
Inclusion criteria
- Be a family member, friend or close other aged 18 and above considered to be the primary caregiver and/or sibling of someone who has experienced a manic episode and/or psychosis.
- Primary caregiver is a family member who satisfies at least three of the following criteria, or a non-family member who satisfies at least two of the following criteria:
- Is a spouse, parent, or close other
- Has the most frequent contact with the patient
- Helps to support the patient financially
- Has most frequently been a collateral in the patient’s treatment
- Is contacted by treatment staff in case of emergency
Exclusion criteria
- An inability to speak or read English without an interpreter
What's involved
Participation in this study is voluntary and involves completing an online survey. The survey can take up to 90 minutes but can be saved and completed over multiple sittings.
As a token of our appreciation, you’ll enter a draw to win one of five $200 gift vouchers on completing the survey
Ethics
All research in Australia involving human participants is reviewed by an independent group called a Human Research Ethics Committee (HREC). The ethical aspects of this research study have been approved by the Royal Melbourne Hospital HREC.
This study is being carried out according to the National Statement on Ethical Conduct in Human Research (2007). This statement protects the interests of people who agree to participate in human research studies.