Do you provide care to, or are you the sibling of, someone who has experienced a manic episode of psychosis?

The CARE Study – Experience of caregiving for individuals with mental illness

Both mania and psychosis can involve changes to a person’s mood, thinking, and behaviour and can impact a person’s social life and participation in work or education. These mental health conditions not only affect the person who has the disorder but also the lives of family members and friends who help support them.

By completing this survey, you will be contributing to a better understanding of caregiver and sibling experiences. This information will be particularly helpful for working out ways to better support caregivers and siblings. 

Anticipated date that enrolment will close: 31 December 2023

Who can take part

Inclusion criteria:

  1. Be a family member, friend or close other aged 18 and above considered to be the primary caregiver and/or sibling of someone who has experienced a manic episode and/or psychosis.
  2. A primary caregiver is a family member who satisfies at least three of the following criteria, or a non-family member who satisfies at least two of the following criteria:
  • is a spouse, parent, or close other;
  • has the most frequent contact with the patient;
  • helps to support the patient financially;
  • has most frequently been a collateral in the patient’s treatment;
  • is contacted by treatment staff in case of emergency.


  • An inability to speak or read English without an interpreter

What is involved for you

  • Participation in this study is voluntary and involves completing an online survey.
  • The survey can take up to 90 minutes but can be saved and completed over multiple sittings.
  • As a token of our appreciation, you’ll enter a draw to win one of five $200 gift vouchers upon completing the survey.

Individuals interested in taking part in the study can find out more via Orygen.

Phase 1
Phase 2
Phase 3
Phase 4

For more information

Quote reference number
Study coordinator / investigator
0409 739 720